Percepción de la calidad de vida de las familias y las personas con autismo en el Centro de Desarrollo NEURODID dentro del período lectivo 2022-2023

Abstract

Raising a boy or girl with ASD entails a series of challenges and stresses that can significantly impact the quality of life of their families. Therefore, this research addresses the problem of the quality of life of children with Autism Spectrum Disorder (ASD) and the experience of their families at the NEURODID Pedagogical Center. The objective of the study was to analyze the perceptions and challenges faced by mothers who care for autistic children, as well as explore the interaction with the educational system and the coping strategies used. The methodology used includes semi-structured interviews, focus group and observations to collect qualitative data. The study population consists of four mothers and their children with autism. The results reveal common patterns and recurring themes in shared experiences, highlighting the importance of access to support services and the need for greater understanding and awareness in society. In conclusion, the study highlights the importance of providing comprehensive support to families of children with autism to improve their quality of life and promote greater educational and social inclusion.