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Título :	Parenting children with Down syndrome: Societal influences
Otros títulos :
Autor:	Huiracocha Tutiven, Maria De lourdes Blume, Stuart Arteaga, Andrea Arteaga, Jorge Almeida Herdoiza, Carlos Alberto Huiracocha Tutiven, Martha Karina
Correspondencia:	Blume, Stuart, ln.avu@emulb.s.s
Palabras clave :	Communication skills family stigma Ecuador Down syndrome
Área de conocimiento FRASCATI amplio:	3. Ciencias Médicas y de la Salud
Área de conocimiento FRASCATI detallado:	3.3.13 Ciencias Sociales Biomédicas
Área de conocimiento FRASCATI específico:	3.3 Ciencias de la Salud
Área de conocimiento UNESCO amplio:	09 - Salud y Bienestar
ÁArea de conocimiento UNESCO detallado:	0912 - Medicina
Área de conocimiento UNESCO específico:	091 - Salud
Fecha de publicación :	2017
Volumen:	Volumen 21, número 4
Fuente:	Journal of Child Health Care
metadata.dc.identifier.doi:	10.1177/1367493517727131
Tipo:	ARTÍCULO
Resumen :	Most studies of parenting children with Down syndrome (DS) have been conducted in indus trialized countries. They suggest that sensitive communication on the part of professionals, and social support, can lead to acceptance and positive adjustments in the family. This study examined the impact of a diagnosis of DS on Ecuadorian families, in particular at how the diagnosis had been communicated and received, as well as the feelings and experiences which followed. Despite considerable progress in recent years, Ecuador is still marked by discriminatory attitudes which affect children with disabilities and their families, and by the persistence of widespread poverty. This qualitative study, conducted in Cuenca, Ecuador’s third largest city, is based on a focus group discussion and four in-depth interviews with Ecuadorian parents of DS children attending a spe cialist center in the city. The study shows that, reflecting the effects of status differences and lack of appropriate training, professionals rarely communicate a DS diagnosis in an appropriate manner. Further, it is shown that lack of social support, and the widespread stigmatization confronting children with DS and their families, hinder development of positive and empowering adjustments that would best serve the child’s and the family’s interest
URI :	http://dspace.ucuenca.edu.ec/handle/123456789/41872 https://www.scopus.com/record/display.uri?eid=2-s2.0-85034744463&origin=resultslist&sort=plf-f&src=s&sid=6f555b45b9d1d78c2c2f22e7184ea8d4&sot=b&sdt=b&s=TITLE-ABS-KEY%28Parenting+children+with+Down+syndrome%3A+Societal+influences%29&sl=73&sessionSearchId=6f555b45b9d1d78c2c2f22e7184ea8d4
URI Fuente:	https://www.ncbi.nlm.nih.gov/
ISSN :	1367-4935
Aparece en las colecciones:	Artículos

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