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https://dspace.ucuenca.edu.ec/handle/123456789/41872Full metadata record
| DC Field | Value | Language |
|---|---|---|
| dc.contributor.author | Huiracocha Tutiven, Maria De lourdes | |
| dc.contributor.author | Blume, Stuart | |
| dc.contributor.author | Arteaga, Andrea | |
| dc.contributor.author | Arteaga, Jorge | |
| dc.contributor.author | Almeida Herdoiza, Carlos Alberto | |
| dc.contributor.author | Huiracocha Tutiven, Martha Karina | |
| dc.date.accessioned | 2023-05-10T16:39:56Z | - |
| dc.date.available | 2023-05-10T16:39:56Z | - |
| dc.date.issued | 2017 | |
| dc.identifier.issn | 1367-4935 | |
| dc.identifier.uri | http://dspace.ucuenca.edu.ec/handle/123456789/41872 | - |
| dc.identifier.uri | https://www.scopus.com/record/display.uri?eid=2-s2.0-85034744463&origin=resultslist&sort=plf-f&src=s&sid=6f555b45b9d1d78c2c2f22e7184ea8d4&sot=b&sdt=b&s=TITLE-ABS-KEY%28Parenting+children+with+Down+syndrome%3A+Societal+influences%29&sl=73&sessionSearchId=6f555b45b9d1d78c2c2f22e7184ea8d4 | |
| dc.description | Most studies of parenting children with Down syndrome (DS) have been conducted in indus trialized countries. They suggest that sensitive communication on the part of professionals, and social support, can lead to acceptance and positive adjustments in the family. This study examined the impact of a diagnosis of DS on Ecuadorian families, in particular at how the diagnosis had been communicated and received, as well as the feelings and experiences which followed. Despite considerable progress in recent years, Ecuador is still marked by discriminatory attitudes which affect children with disabilities and their families, and by the persistence of widespread poverty. This qualitative study, conducted in Cuenca, Ecuador’s third largest city, is based on a focus group discussion and four in-depth interviews with Ecuadorian parents of DS children attending a spe cialist center in the city. The study shows that, reflecting the effects of status differences and lack of appropriate training, professionals rarely communicate a DS diagnosis in an appropriate manner. Further, it is shown that lack of social support, and the widespread stigmatization confronting children with DS and their families, hinder development of positive and empowering adjustments that would best serve the child’s and the family’s interest | |
| dc.language.iso | es_ES | |
| dc.source | Journal of Child Health Care | |
| dc.subject | Communication skills | |
| dc.subject | family | |
| dc.subject | stigma | |
| dc.subject | Ecuador | |
| dc.subject | Down syndrome | |
| dc.title | Parenting children with Down syndrome: Societal influences | |
| dc.title.alternative | ||
| dc.type | ARTÍCULO | |
| dc.ucuenca.idautor | 57197780949 | |
| dc.ucuenca.idautor | 0101989028 | |
| dc.ucuenca.idautor | 0104728753 | |
| dc.ucuenca.idautor | 0102154879 | |
| dc.ucuenca.idautor | 57197786812 | |
| dc.ucuenca.idautor | 0000-0002-7557-8830 | |
| dc.identifier.doi | 10.1177/1367493517727131 | |
| dc.ucuenca.version | Versión publicada | |
| dc.ucuenca.areaconocimientounescoamplio | 09 - Salud y Bienestar | |
| dc.ucuenca.afiliacion | Arteaga, J., Ministerio de Salud Pública Ecuador (MSP), Quito, Ecuador | |
| dc.ucuenca.afiliacion | Blume, S., University of Amsterdam, Amsterdam, Holanda | |
| dc.ucuenca.afiliacion | Arteaga, A., Ministerio de Salud Pública Ecuador (MSP), Quito, Ecuador | |
| dc.ucuenca.afiliacion | Huiracocha, M., Universidad del Azuay, Cuenca, Ecuador | |
| dc.ucuenca.afiliacion | Almeida, C., Ministerio de Inclusión Económica y Social, Cuenca, Ecuador | |
| dc.ucuenca.afiliacion | Huiracocha, M., Universidad de Cuenca, Facultad de Ciencias Médicas, Cuenca, Ecuador | |
| dc.ucuenca.correspondencia | Blume, Stuart, ln.avu@emulb.s.s | |
| dc.ucuenca.volumen | Volumen 21, número 4 | |
| dc.ucuenca.indicebibliografico | SCOPUS | |
| dc.ucuenca.factorimpacto | 0.465 | |
| dc.ucuenca.cuartil | Q1 | |
| dc.ucuenca.numerocitaciones | 0 | |
| dc.ucuenca.areaconocimientofrascatiamplio | 3. Ciencias Médicas y de la Salud | |
| dc.ucuenca.areaconocimientofrascatiespecifico | 3.3 Ciencias de la Salud | |
| dc.ucuenca.areaconocimientofrascatidetallado | 3.3.13 Ciencias Sociales Biomédicas | |
| dc.ucuenca.areaconocimientounescoespecifico | 091 - Salud | |
| dc.ucuenca.areaconocimientounescodetallado | 0912 - Medicina | |
| dc.ucuenca.urifuente | https://www.ncbi.nlm.nih.gov/ | |
| Appears in Collections: | Artículos | |
Files in This Item:
| File | Size | Format | |
|---|---|---|---|
| documento.pdf | 176.18 kB | Adobe PDF | View/Open |
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