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Title:	Parenting children with Down syndrome: Societal influences
Other Titles:
Authors:	Huiracocha Tutiven, Maria De lourdes Blume, Stuart Arteaga, Andrea Arteaga, Jorge Almeida Herdoiza, Carlos Alberto Huiracocha Tutiven, Martha Karina
metadata.dc.ucuenca.correspondencia:	Blume, Stuart, ln.avu@emulb.s.s
Keywords:	Communication skills family stigma Ecuador Down syndrome
metadata.dc.ucuenca.areaconocimientofrascatiamplio:	3. Ciencias Médicas y de la Salud
metadata.dc.ucuenca.areaconocimientofrascatidetallado:	3.3.13 Ciencias Sociales Biomédicas
metadata.dc.ucuenca.areaconocimientofrascatiespecifico:	3.3 Ciencias de la Salud
metadata.dc.ucuenca.areaconocimientounescoamplio:	09 - Salud y Bienestar
metadata.dc.ucuenca.areaconocimientounescodetallado:	0912 - Medicina
metadata.dc.ucuenca.areaconocimientounescoespecifico:	091 - Salud
Issue Date:	2017
metadata.dc.ucuenca.volumen:	Volumen 21, número 4
metadata.dc.source:	Journal of Child Health Care
metadata.dc.identifier.doi:	10.1177/1367493517727131
metadata.dc.type:	ARTÍCULO
Description:	Most studies of parenting children with Down syndrome (DS) have been conducted in indus trialized countries. They suggest that sensitive communication on the part of professionals, and social support, can lead to acceptance and positive adjustments in the family. This study examined the impact of a diagnosis of DS on Ecuadorian families, in particular at how the diagnosis had been communicated and received, as well as the feelings and experiences which followed. Despite considerable progress in recent years, Ecuador is still marked by discriminatory attitudes which affect children with disabilities and their families, and by the persistence of widespread poverty. This qualitative study, conducted in Cuenca, Ecuador’s third largest city, is based on a focus group discussion and four in-depth interviews with Ecuadorian parents of DS children attending a spe cialist center in the city. The study shows that, reflecting the effects of status differences and lack of appropriate training, professionals rarely communicate a DS diagnosis in an appropriate manner. Further, it is shown that lack of social support, and the widespread stigmatization confronting children with DS and their families, hinder development of positive and empowering adjustments that would best serve the child’s and the family’s interest
URI:	http://dspace.ucuenca.edu.ec/handle/123456789/41872 https://www.scopus.com/record/display.uri?eid=2-s2.0-85034744463&origin=resultslist&sort=plf-f&src=s&sid=6f555b45b9d1d78c2c2f22e7184ea8d4&sot=b&sdt=b&s=TITLE-ABS-KEY%28Parenting+children+with+Down+syndrome%3A+Societal+influences%29&sl=73&sessionSearchId=6f555b45b9d1d78c2c2f22e7184ea8d4
metadata.dc.ucuenca.urifuente:	https://www.ncbi.nlm.nih.gov/
ISSN:	1367-4935
Appears in Collections:	Artículos

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